Who You AreYou're someone who understands that great community work is not just about driving engagement. It's about building trust, creating belonging, and helping people feel seen, supported, and informed during vulnerable moments in their lives.
You're naturally empathetic, emotionally intelligent, and deeply curious about people's lived experiences. You know how to facilitate conversations that feel authentic, supportive, and safe while balancing compassion with thoughtful moderation and strong judgment.
You understand the specific dynamics that shape the SCD experience: why patients are often dismissed or stigmatized in emergency rooms, why misinformation spreads so quickly, why navigating Social Security Disability can feel like a second full-time job, and why fatigue - though one of the most debilitating symptoms - is so often overlooked. You bring cultural fluency and credibility to conversations about race, health equity, and the particular trust challenges this community faces.
You're comfortable navigating sensitive topics related to healthcare access, treatment journeys, stigma, misinformation, and social determinants of health - including housing, transportation, and nutrition - with care and professionalism.
We strongly value candidates who bring a deep understanding of and connection to the SCD community through professional work, advocacy, caregiving, or lived experience.
If you've built online communities, supported patient or advocacy groups, moderated highly engaged social spaces, or worked in mission-driven environments focused on connection and trust, we'd love to hear from you.
What you'll doLaunch and Lead the SCD Community - Serve as the primary community manager for our new sickle cell disease community - a visible, credible, and trusted presence from day one
- Set the tone for authentic, safe, and culturally fluent participation during the critical early months of launch
- Shape discussion topics, norms, and member experiences that reflect the real and complex realities of living with SCD
Foster Meaningful Engagement - Welcome new members and help create an environment where people feel comfortable participating and sharing
- Support ambassadors and highly engaged members who help strengthen trust, connection, and belonging within the community
- Create thoughtful prompts, polls, Q&As, educational discussions, and storytelling opportunities that encourage authentic conversation and practical peer support - covering SCD-specific topics like ER navigation, gene therapy access, fatigue, disability benefits, etc.
Cultivate Safe and Supportive Community Experiences - Moderate conversations to maintain a safe, respectful, and inclusive environment
- Navigate misinformation - including unproven treatments - with nuance and education rather than censorship, while maintaining evidence-based standards
- Help members discover trustworthy, evidence-informed resources while honoring the importance of lived experience and peer connection
Advocate for Members - Surface member insights, recurring challenges, and emerging themes to the Product, Editorial, Marketing, and Research teams
- Help internal partners better understand the emotional and practical realities members face beyond clinical symptoms alone
- Contribute ideas that improve how the Community, Email, Product, and Content experiences work together to better support members
Support Community Growth and Health - Manage a broader portfolio of health communities alongside your primary SCD focus
- Analyze engagement patterns and community trends to refine strategies and improve member connection
- Experiment thoughtfully with new engagement approaches while staying grounded in member needs and community safety
Skills and Qualifications- 3+ years of experience building and managing online communities, patient communities, peer support spaces, or highly relationship-driven digital experiences
- Strong written and verbal communication skills with the ability to foster thoughtful, supportive, member-centered experiences
- A quick, empathetic, and thoughtful approach to member interactions
- Strong emotional intelligence and the ability to navigate sensitive conversations with care and professionalism
- Experience building trust with diverse communities and fostering inclusive participation
- Comfort collaborating cross-functionally with the Product, Content, Analytics, Marketing, and Community teams
Skills That Aren't Required, but Definitely a Plus- Deep, credible connection to the sickle cell disease community through professional work, sustained advocacy, caregiving, or lived experience
- Cultural fluency with the African American community and a nuanced understanding of the trust, stigma, and healthcare access dynamics specific to the SCD experience
- Experience in patient advocacy, public health, social work, behavioral health, caregiving, or online peer support
- Experience balancing community insights, empathy, and data-informed decision-making
How To ApplyTo apply for this position, please submit:
• Your resume
• A cover letter that answers the following question:
Tell us about a time you noticed an unmet need within a community and took action to support or improve someone's experience. What did you notice, what did you do, and what was the outcome?
The pay range for this role is:
100,000 - 110,000 USD per year (Remote (United States))
