About the roleWe are looking for a Head of Community Marketing to build and lead our community marketing strategy for the patients, families, and caregivers of the rare disease population we serve. You'll turn a scattered, often isolated population into an engaged community, and turn that community into a growth engine for Probably Genetic.
What you will do- Define and own our community marketing strategy, spanning virtual (social, online groups, content, email) and in-person (events, conferences, meetups, fundraisers) channels
- Develop original campaign concepts to activate and grow patient and caregiver communities
- Build and own relationships with patient advocacy groups (PAGs) and foundations across hundreds of rare diseases, strengthening existing partnerships and cultivating new ones
- Test and iterate across tactics, including referral and email outreach, PAG partnerships and sponsorships, events, participant compensation, and paid media
- Track how community efforts influence key metrics, including patient acquisition and CAC, and adjust strategy accordingly
- Build scalable, repeatable playbooks for community-driven growth
- Represent Probably Genetic at conferences, fundraisers, and community events, with regular travel expected
Who you areWe are looking for a few specific things that will help you succeed in this role:
- 5-10 years of experience in community marketing or community-led growth at a consumer brand known for genuine community engagement (health/wellness, fitness, productivity, or lifestyle products with passionate user bases are a strong fit)
- A track record of building or significantly growing a community with active participation, members creating content, referring others, and organizing around the brand themselves
- Creative instincts for community activation, from concept to execution
- Fluency in both virtual and in-person community building
- Comfort using data to guide decisions and identify what's driving growth, engagement, and CAC
- Genuine empathy for engaging a sensitive, high-stakes population; you never lose sight of the real people behind the community
- Strong written and verbal communication; you can shape a brand's voice and adapt it to a high-trust context
- Willingness to travel regularly for events and partner meetings
Some things that are not required, but you will learn on the job:
- Familiarity with the rare disease landscape or existing relationships within the rare disease community
As with all new hires at Probably Genetic, you will also need to be:
- A good person. We work with some of the most marginalized populations on the planet and empathy is key
- Patient-focused and motivated to have a lasting, positive impact on humanity
- Comfortable in a fast-paced, often ambiguous environment with rapid change
- Action-oriented and excited to build a company from the ground up
The salary range for this role is $120,000-$185,000 annually. Actual compensation offered will depend on several factors including but not limited to: work experience, education, skill level, and/or other business and organizational needs.
What we offer at Probably Genetic:- An engaging and supportive team all on a mission to improve lives
- Fair and equitable compensation with competitive early-stage equity grants
- Generous Flexible Time off policy, that we actually use
- Parental Leave Benefits (12 weeks for both birthing and non-birthing)
- Hybrid, flexible work with high-trust and autonomy
- A bright, inviting, pet-friendly office in Downtown SF near transit
- Company-sponsored team lunch every Thursday
- A "work from anywhere" policy, up to 4 weeks a year
- Regular team retreats in exciting destinations
- Health Benefits including medical, dental, vision, therapy, FSA, and 401k
- And so much more!
