Associate Director, US Patient Advocacy

Associate Director, US Patient Advocacy This person will be responsible for acting as the primary point of contact for our external Patient Advocacy Organization (PAO) partners as well as our internal argenx teams to ensure we show up consistently as their partner of choice. To be successful, this person will need to set and maintain an indication-level Advocacy strategy, communicate the strategy to internal/external partners, bring the patient voice into development milestones (e.g., end point selection, etc.), and partner with our cross-functional teams to show up for our patient communities for in-market indications during the moments that matter. This is a remote-based position. To help meet the needs of the patient communities we serve, you will spend meaningful time in the geographies you cover, building relationships with PAOs and attending prioritized patient events either live or virtually as appropriate. At times, these events may take place outside of standard business hours, a flexible schedule will be developed to accommodate evening and weekend work. Key Responsibilities Include: Patient Advocacy Organization + External Engagement Responsibilities 34; Develop and implement patient advocacy strategies and engagement plans for disease therapeutic areas, ensuring alignment with corporate objectives and strategies. 34; Effectively balance and prioritize both pipeline indications and in market indications (i.e. gMG and CIDP). 34; Execute patient advocacy engagement strategy Nationally and/or in local geographies that are aligned with cross-functional teams for in-market indications, translating US and market strategies to actionable tactics & events 34; Build and manage relationships with US PAOs 34; Build understanding of patient needs through interactive engagement such as prioritized patient events, patient panels, and cross-functionally identified opportunities, etc. 34; Provide local support to patient services team during the patient onboarding process 34; Represent argenx externally at events & conferences to educate and engage with patients, empowering other teams to do so when necessary 34; Define and measure business impact at local, regional, and national events 34; Build and maintain proficiency in the disease state, Patient Experience, and product knowledge to support the needs of the community Internal Engagement and Cross Functional Responsibilities 34; Inform local market engagement by generating and synthesizing insights for teams 34; Work cross-functionally within the ecosystem of support at argenx to identify the needs and opportunities relevant to patient advocacy 34; Be a voice for the community within the organization and within the Advocacy team based on assigned pipeline & all in-market indications 34; Effectively manage internal operations, including compliant management of events, patient advocacy organization sponsorships, and budgeting process. 34; Build and own the Advocacy strategy for assigned indications from development through in-market in collaboration with your TA-level Advocacy colleagues 34; Ensure alignment of activities and prioritization to strategy through frameworks, standardization, and ways of working Requirements: 34; Bachelor's Degree required 34; 10 years industry or related experience 34; Proven capability and success implementing innovative programs within rare disease and with minority and underserved patient communities 34; Proven track record setting and maintaining adherence to an Advocacy strategy for a given indication or Therapeutic Area 34; Veeva experience and proficiency required 34; Experience with rare disease patient interactions and compliance required 34; Willing to travel up to 50% of the time and attend events outside of business hours (e.g., weekends and evenings). Flexible schedule will be developed to accommodate evening and weekend work. Skills, Knowledge & Abilities: 34; Passion for understanding and championing the needs of people living with rare diseases, their caregivers, and their community, resulting in elevated Patient Experience 34; Strong communication skills with the ability to listen actively, express ideas fluently and succinctly both in person and in writing, and present effectively; especially important to understand the perspectives of and work collaboratively with other argenx internal stakeholders 34; Desire to integrate the patient voice into the end-to-end product lifecycle at argenx and the knowledge to know when, where, and how to do so 34; Preferences: Advanced Degree #LI-Remote For applicants in the United States: The annual base salary hiring range for this position is $164,000.00 - $225,500.00 USD. This range reflects our good faith estimate at the time of posting. Individual compensation is determined using objective, inclusive, and job-related criteria such as relevant experience, skills, demonstrated competencies and internal equity. This means actual pay may differ from the posted range when justified by these factors. Because market conditions evolve, pay ranges are reviewed regularly and may be adjusted to remain aligned with external benchmarks. This job is eligible to participate in our short-term and long-term incentive programs, subject to the terms and conditions of those plans and applicable policies. It also includes a comprehensive benefits package, including but not limited to retirement savings plans, health benefits and other benefits subject to the terms of the applicable plans and program guidelines.