Job DescriptionAre you a compassionate, highly organized nurse who thrives in complex care environments? Join our team as an ALS and Muscular Dystrophy Clinical Program Coordinator and become a trusted guide for patients and families navigating life with progressive neuromuscular disease.
In this dynamic role, you will combine clinical expertise, care coordination, advocacy, education, data management, and program development to help patients receive seamless, timely, and personalized care.
ResponsibilitiesWhat You'll Do
- Coordinate comprehensive care for patients with ALS and muscular dystrophy.
- Serve as a consistent point of contact for patients, families, providers, and community resources.
- Navigate complex, high-acuity clinical needs across multiple specialties.
- Facilitate appointments, referrals, testing, treatment planning, and follow-up care.
- Provide patient and family education, support, and advocacy.
- Collaborate with neurologists, therapists, social workers, respiratory specialists, and other members of the multidisciplinary team.
- Collect, analyze, and maintain program and patient-care data.
- Create reports, presentations, and quality-improvement materials.
- Provide administrative support for program operations and clinical workflows.
- Participate in research, grant development, and program-improvement initiatives.
- Help build innovative services that improve access, continuity, and outcomes.
What You Bring.
- Experience with care coordination, patient navigation, or complex case management.
- Neurology, neuromuscular, ALS, or muscular dystrophy experience strongly preferred.
- Ability to manage high patient acuity with compassion, confidence, and sound clinical judgment.
- Experience with data collection, reporting, and presentations.
- Strong communication, organization, problem-solving, and relationship-building skills.
- Research experience and grant-writing knowledge are a plus.
Why This Role Matters
This is more than a nursing position-it is an opportunity to become a lifeline for patients and families while helping shape the future of neuromuscular care. If you are energized by complex challenges, meaningful relationships, and the chance to improve an entire patient-care journey, we invite you to bring your expertise and heart to our team.
QualificationsEducation
- Bachelor's Degree Bachelor's of Science, Nursing - minimum
- Master's Degree Master's of Science, Nursing - preferred
Experience
- 3 years Experience in an acute care setting (transplant, cancer, breast, pre-natal); preferred experience with program development and implementation of navigator programs. - minimum
Licenses and Certifications
- RN State License - Upon Hire minimum Registered Nurse
- ANCC Specialty Certification - 1 Year minimum Professional Certification in area of specialty
