Job Description Summary
#LI- Remote
The Patient and Community Liaison (PCL) is a pivotal patient and caregiver-facing role that serves as a trusted partner to the Duchenne Muscular Dystrophy (DMD) and Spinal Muscular Atrophy (SMA) communities, fostering meaningful relationships with patients, caregivers, and advocacy organizations. Through live and virtual engagements, the PCL delivers impactful education on DMD, SMA, gene therapy, and Novartis therapies while elevating the voice of the patient community across the organization. Insights gathered from stakeholders are shared with Advocacy, Marketing Strategy, and Product Strategy teams to help shape programs, resources, and market strategies that enhance the patient experience and support business objectives.

This position can be based remotely in the following Northeast U.S. states: New York, New Jersey, Massachusetts, New Hampshire, Maine, Vermont, Rhode Island, Ohio or Michigan (there may be some restrictions based on legal entity). Please note that this role would not provide relocation as a result. The expectation of working hours and travel (domestic and/or international) will be defined by the Hiring Manager. This position will require 70% travel with weekend travel required.

Job Description

Key Responsibilities:

• Deliver accurate and empathetic information about disease progression, symptoms, and unmet needs for patients and caregivers.
• Empower patients and caregivers with knowledge and tools to navigate their DMD or SMA journey.
• Educate patients and caregivers about the benefits, proper use, and potential side effects of the brand product(s), ensuring adherence to company-approved materials and guidelines. Provide resources and education on treatment expectations.
• Develop relationships with local advocacy chapter leads and attend events throughout the country by hosting the Novartis table, meeting with DMD or SMA families, answering questions and delivering presentations. The majority of live events are held on weekends.
• Reactively respond to virtual inquiries from patients and/or caregivers that come through via phone or email.
• Hold virtual meetings with local patient advocacy leads and/or local communities to provide education; these events may occur on weekends or weekdays after hours.
• Provide insights/learnings to cross functional teams to help support development of educational materials, presentations, and resources to further patient and caregiver understanding. Identify gaps in patient and caregiver knowledge and provide recommendations for improving educational content.
• Document interactions and feedback from patients and caregivers to improve the education program and support outcomes tracking.
• Contribute and participate in required internal and business reviews; may include preparation of meeting materials. Contribute and participate in functional planning for tactical plan, budgeting, etc.
• Maintain high scientific and current knowledge about responsible products and therapeutic areas and maintain working knowledge of required platforms and processes (Concur, Salesforce, FUSE, etc.).

Essential Requirements:

• Bachelor's degree in healthcare (i.e. social work, genetic counseling) education, or a related field
• At least 5 years of experience in patient education, pharmaceutical, or healthcare support roles
• Ability to travel 70% of time, with weekend travel required
• Bilingual (Spanish/English)
• Experience delivering presentations in front of a live audience with exceptional communication/interpersonal skills and ability to connect with diverse populations. Ability to present complex information in an empathetic, clear, and engaging manner.
• Experience working within regulatory and compliance guidelines in the healthcare or pharmaceutical industries.
• Proficiency in using virtual tools for education (e.g., video conferencing, webinars) with the ability to think creatively and conceptually
• Ability to lead, motivate, develop, and influence others. Strong teamwork and collaborative skills and mindset. Proven ability to work effectively in a matrixed environment.
• Financial/budgetary experience

Desirable Requirements:

• Experience in neuroscience/neuromuscular therapies, gene therapy and rare disease

Novartis Compensation Summary:

The salary for this position is expected to range between $152,600 and $283,400 per year.

The final salary offered is determined based on factors like, but not limited to, relevant skills and experience, and upon joining Novartis will be reviewed periodically. Novartis may change the published salary range based on company and market factors.

Your compensation will include a performance-based cash incentive and, depending on the level of the role, eligibility to be considered for annual equity awards.

US-based eligible employees will receive a comprehensive benefits package that includes health, life and disability benefits, a 401(k) with company contribution and match, and a variety of other benefits. In addition, employees are eligible for a generous time off package including vacation, personal days, holidays and other leaves.

Salary Range
$152,600.00 - $283,400.00

Skills Desired
Asset Management, Commercial Excellence, Cross-Functional Collaboration, Influencing Skills, Leadership, Operational Excellence, Product Lifecycle Management (PLM), Product Marketing, Stakeholder Engagement, Stakeholder Management